Scheda n

International Center for Studies and Training “Germana
Gaslini”
Provider Nazionale Accreditato ECM n. 856
Certificazione ISO9001:2008
GENERAL INFORMATION
Registration
The course is open to 60 nephrologists, pediatricians, medical
genetists and biologists.
Applications will be accepted on a first come-first served basis.
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Deadline for registration: March 15 , 2013.
Please, fill in the registration form to be downloaded from the
course website and return it to the organizing secretariat.
CISEF Director: Antonio Infante
Registration fees
AIMS
The rationale of this Workshop is to share current experience of the
Registry of paediatric patients on renal replacement therapy
(dialysis and renal transplantation) held by the European Society
for Paediatric Nephrology (ESPN) in collaboration with the
European Renal Association - European Dialysis and
Transplantation Association (ERA-EDTA) and operating at the
European level, with that of other registries and study groups which
are currently active in the field of renal diseases, both in paediatric
and in adult nephrology.
The Workshop will be organized in strict cooperation with the
Working Group on Inherited Kidney Disorders of the ERA-EDTA
and will include a CME Course on “Nephrology registries and
genetic renal diseases”.
The main issues which will be addressed during the Workshop are
represented by:
1) Data from national and international registries and databases of
patients affected by renal diseases: epidemiology, diagnosis,
management and treatment.
2) Update on the diagnosis of genetic diseases involving the
kidney and the urinary tract.
The goals of the Workshop are:
1) To increase the participants’ knowledge on rare kidney
diseases and their ability to take care of affected patients.
2) To facilitate the communication and the exchange of data and
information between the existing registries in the field of renal
diseases (with the ultimate goal of “merging” the different
databases).
Scientific Committee of the Meeting
Giovanni Capasso (Napoli, Italy)
Pierre Cochat, Lyon (France)
Rosanna Coppo (Torino, Italy)
Olivier Devuyst (Zurich, Switzerland)
Gianmarco Ghiggeri (Genova, Italy)
Kitty Jager (Amsterdam, The Netherlands)
Roberto Ravazzolo (Genova, Italy)
Franz Schaefer (Heidelberg, Germany)
Enrico Eugenio Verrina (Genova, Italy)
The fee of euros 100,00 (50,00 for PhD students and post-docs
and for IGG personnel) covers: access to scientific sessions, the
welcome cocktail of March 22, 2 coffee breaks and attendance
certificate.
The fee can be paid after receiving confirmation from the
organizing secretariat.
Italian CME credits
WORKSHOP ON
NEPHROLOGY REGISTRIES
Including the
CME COURSE:
“NEPHROLOGY REGISTRIES
AND GENETIC RENAL DISEASES”
dedicated to Rosanna Gusmano
The course “Nephrology registries and genetic renal diseases”
has been accredited for Medical Doctors and Biologists
(8 credits).
Discipline: Paediatrics, Nephrology, Medical Genetics.
Official language
English
Venue
Villa Quartara, Badia Benedettina della Castagna
Via Romana della Castagna 11 A, 16148 Genoa, Italy.
How to reach the venue
Plane: from the International Airport Cristoforo Colombo, shuttle
bus n. 100 (runs every hour) takes you to Genova Brignole
railway station, where you can take bus n. 17 to Via Romana
della Castagna.
Train: get off at Genova Brignole railway station, take bus n. 17
and get off in Corso Europa, in front of Via Romana della
Castagna.
Car: motorway exit Genova-Nervi, take Corso Europa westwards,
take the overpass to change direction and drive eastwards, pass
the Hotel AC and ESSO gas station on the right, after 50 mts. turn
right into Via Romana della Castagna, go straight 80 mts., enter
the gate and follow the dust lane up to the parking lot.
Accommodation
Please make your arrangement well in advance.
Special rates at the AC Marriot Hotel**** - Genova-Quarto
+39-010-3071180 located at walking distance from the Badia as
well as at the Hotel Iris *** - Genova-Quarto
+39-0103773914. Always mention the CISEF course.
Course Directors
G.M. Ghiggeri, E. Verrina
March 22-23, 2013
Villa Quartara, Badia della Castagna
Genoa, Italy
Organizing Secretariat
Manuela Aloe
C.I.S.E.F. International Center for Studies and Training "Germana
Gaslini", Genoa
tel.: 010 5636.864; fax: 010 5636855
e-mail: [email protected] - www.cisef.org
G. Gaslini Children's Hospital
Genoa
Faculty
Antonio Amoroso
Transplantation Regional Centre, Piemonte Region
“Città della Salute e della Scienza” Hospital, Torino, Italy
Corinne Antignac
Service de Génétique, Hopital Necker–Enfants Malades, Paris,
France
Giovanni Capasso
Chair of Nephrology, Department of Internal Medicine
II University of Naples, Naples, Italy
Pierre Cochat
Centre de référence des maladies rénales rares, Hospices Civils
de Lyon and Université Claude-Bernard Lyon 1, Lyon, France
Rosanna Coppo
Nephrology Dialysis and Transplantation
Regina Margherita Children’s Hospital, Torino, Itlay
Olivier Devuyst
University of Zurich, Institute of Physiology
Zurich Center for Integrative Human Physiology
Zurich, Switzerland
Francesco Emma
Department of Pediatric Nephrology, Dialysis and Transplantation
Bambino Gesù Children’s Hospital, Rome, Italy
Giulio Gabbiani
Department of Pathology and Immunology
University of Geneva, Geneva, Switzerland
Ali Gharavi
Division of Nephrology, Columbia University, New York, USA
Gianmarco Ghiggeri
Pediatric Nephrology, Dialysis and Transplantation Department
G. Gaslini Children’s Hospital, Genoa, Italy
Jaap Groothoff
Department of Pediatric Nephrology, Academic Medical Center
Amsterdam, The Netherlands
Jerome Harambat
Department of Pediatrics, University of Bordeaux, Bordeaux,
France
Kitty Jager
ERA-EDTA Registry, Department of Medical Informatics
Academic Medical Center, Amsterdam, The Netherlands
Martin Konrad
Department of General Pediatrics
University Hospital Muenster, Munster, Germany
Marina Noris
Department of Molecular Medicine
“Aldo e Cele Dacco” Clinical Research Centre for Rare Diseases
Bergamo, Italy
Luca Rampoldi
Dulbecco Telethon Institute
San Raffaele Scientific Institute, Milano, Italy
Simone Sanna Cherchi
Division of Nephrology, Columbia University, New York, USA
Gaia Scavia
Istituto Superiore di Sanità, Rome, Italy
Franz Schaefer
Division of Pediatric Nephrology
KfH Kidney Center for Children and Adolescents
University of Heidelberg, Heidelberg, Germany
Constantinos J. Stefanidis
Department of Pediatric Nephrology
"A. and P. Kyriakou" Children's Hospital, Athens, Greece
Enrico Eugenio Verrina
Pediatric Nephrology, Dialysis and Transplantation Department
G. Gaslini Children’s Hospital, Genoa, Italy
PROGRAMME
Friday, March 22, 2013
11. 00 Get-together and briefing
11.30-15.30
-
Parallel sessions: Operative Meetings
ESPN/ERA-EDTA Registry Committee meeting
(Kitty Jager, Franz Schaefer)
Italian Registry of Paediatric Dialysis Scientific Board
meeting (Enrico Verrina)
Italian Registry of Haemolytic Uremic Syndrome
Scientific Board meeting (Gaia Scavia)
Italian Society for Paediatric Nephrology Council
meeting (Tommaso De Palo)
CME Course: “Nephrology registries and genetic
renal diseases”
11.30-15.30 Registration of participants
15.30-17.30
I Session
Organization of renal disease registries and
networks
Coordinator: E. Verrina
Chairman : P. Cochat
K. Jager
The experience and organization of the
ERA-EDTA and ESPN/ERA-EDTA Registry
– what to expect and what not to expect
from a registry.
F. Schaefer The experience and the organization of the
International Paediatric Peritoneal Dialysis
Network.
J. Groothoff The extended registry: flaws and gains,
experience from the RICH Q network.
G. Scavia
The Italian haemolytic uremic syndrome
registry.
17.30
Tea/cookies break
17.45-19.15
II Session
Renal patient registries and rare diseases
Coordinator: Constantino J. Stefanidis
Chairman: R. Coppo
P. Cochat
Survival of children starting renal replacement
therapy in the neonatal period.
J. Harambat Characteristics and outcomes of children with
primary oxalosis requiring renal replacement
therapy: an ESPN/ERA-EDTA Registry study.
F. Emma
Improvement in prognosis of nephropathic
cystinosis.
19.30
Welcome party
Saturday, March 23, 2013
8.15-10.15
III Session
Glomerular diseases
Coordinator: G.M. Ghiggeri
Chairman : A. Amoroso
C. Antignac News on podocyte inherited diseases.
M. Noris
Cytoskeleton genes for nephrotic syndrome
G. Gabbiani Physiology and physiopathology of
cytoskeleton.
10.15
Invited lecture
A. Gharavi Genetics of IgA nephropathy.
11.00
Coffee break
11.30-13.30
IV Session
Renal dysplasia/Inherited tubulo-interstitial fibrosis
Coordinator: O. Devuyst
Chairman: G. Capasso
S. Sanna Cherchi Molecular advances in renal dysplasia
L. Rampoldi
Mechanisms of uromodulin-associated
kidney disorders.
O. Devuyst
Insights into complex diseases: GWAS
and uromodulin.
M. Konrad
Infantile hypercalcemia and related
disorders.
14.00
Closing Remark
Evaluation test for CME Italian credits
and quality assessment questionnaire
Release of certificates of attendance.
REGISTRATION FORM
Settore AFR-AAF
ISTITUTO G.GASLINI
Please fill in and return to the Organizing Secretariat by
Tel.: 010/5636864, Fax: 010/5636885 e-mail: [email protected]
Title of the event: Workshop on Nephrology
CME course: “Nephrology registries and genetic renal diseases”
ID of the event: 1067
Italian C.M.E. ID n°: 856-52936
Venue: Badia della Castagna, Genova
Date: March 23, 24 2013
Personal data:
NAME …………………………………....………FAMILY NAME……………..…………………....……………………..
Private address: ………………..…….…………………………………………………...………………
ZIP code………...............Town………………................………Country…………………………………………………....
Tel……./……………………………………Mobile……................................Fax….../………………….…
e-mail…………………………………………………………
Institute…………………………………………………………………………………………………
Work address:……………………………………..…….………………………...………………………….
ZIP code……...................Town……………………………….…Country………………………
Tel……./………………………………… Mobile………………...................Fax….../…………..
For purposes of Continuing Medical Education accreditation, please provide the following information:
Date of birth:
Place of birth:
Codice Fiscale
Profession:
Discipline:
RECRUITMENT BY SPONSORING COMPANIES
I hereby declare that I have been recruited by
___________________________________________
Signature: ___________________________________________
Registration fee
For Italian participants: Enti Pubblici esenti IVA come disposto dall’art.14, c.10, l. 537/93):
The registration fee of euros 100,00 (euros 50,00 for PhD students and post-docs and for IGG personnel) [*] must
be paid within 5 days after the confirmation of acceptance by the Organizing Secretariat
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REGISTRATION FORM
Settore AFR-AAF
ISTITUTO G.GASLINI
Payment can be made by:
A) Credit card: you can either pay online on the website http://www.cisefweb.org/pagamenti/
or send your data to be used by CISEF to charge your card
-
Visa
-
Maestro 
-
Mastercard  - American Express 
Card N°___________________________________CVC ____________expiration date ______/_____ (MM/YY)
Card holder _______________________________________________
Amount authorised_____________________Signature___________________________Date_______________
B) Bank transfer to: CISEF “Germana Gaslini” cc 11413/80, IBAN IT23B0617501455000001141380, SWIFT/BIC
CODE: CRGEITGG442
Please specify on the transfer “AFR - Registration for (the name of the event)” on behalf of (registrant’s name).
Please send (preferably by fax) copy of the transfer once it has been ordered
All related banking costs are at the registrant’s expenses
C) Check payable to CISEF Germana Gaslini, via Romana della Castagna 11A, 16148 Genova and sent to the
Organizing Secretariat of CISEF with this form duly signed
* The registration fee can be reimbursed only with a 5 days notice before the beginning of the event.
Invoice/Receipt
The invoice/receipt of your payment will be made out to the public or private subject who makes the
payment. Please indicate the full data for the invoice:
The invoice should be made out to …………………………….………….......….………….......….………….......….………….......
address…………………………............N°……...............Zip code.....................Town………………P.IVA/CF……………….........
and sent to the attention of ………………………………………………………………………………………
Privacy policy; (Art.13, Italian law 196/2003)
Your data will be stored in the optical archive of the Istituto G. Gaslini. CISEF will make use of the data provided exclusively for the purpose
of the present event including the Italian Continuing Medical Education programme procedures. They will be forwarded to the Italian CME
National Commission, stored in the CISEF database and used to keep you informed on relevant CISEF forthcoming events and in case of
your future attendance at CISEF events.
Please tick the box if you wish we erase your data from the CISEF database. □
The Centro Internazionale di Studi e Formazione “Germana Gaslini”, via Romana della Castagna, 11A, 16148 Genova is the holder of the
data.
Date……………….… Signature…………………………………………
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A0702.06-03