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International Center for Studies and Training “Germana Gaslini” Provider Nazionale Accreditato ECM n. 856 Certificazione ISO9001:2008 GENERAL INFORMATION Registration The course is open to 60 nephrologists, pediatricians, medical genetists and biologists. Applications will be accepted on a first come-first served basis. th Deadline for registration: March 15 , 2013. Please, fill in the registration form to be downloaded from the course website and return it to the organizing secretariat. CISEF Director: Antonio Infante Registration fees AIMS The rationale of this Workshop is to share current experience of the Registry of paediatric patients on renal replacement therapy (dialysis and renal transplantation) held by the European Society for Paediatric Nephrology (ESPN) in collaboration with the European Renal Association - European Dialysis and Transplantation Association (ERA-EDTA) and operating at the European level, with that of other registries and study groups which are currently active in the field of renal diseases, both in paediatric and in adult nephrology. The Workshop will be organized in strict cooperation with the Working Group on Inherited Kidney Disorders of the ERA-EDTA and will include a CME Course on “Nephrology registries and genetic renal diseases”. The main issues which will be addressed during the Workshop are represented by: 1) Data from national and international registries and databases of patients affected by renal diseases: epidemiology, diagnosis, management and treatment. 2) Update on the diagnosis of genetic diseases involving the kidney and the urinary tract. The goals of the Workshop are: 1) To increase the participants’ knowledge on rare kidney diseases and their ability to take care of affected patients. 2) To facilitate the communication and the exchange of data and information between the existing registries in the field of renal diseases (with the ultimate goal of “merging” the different databases). Scientific Committee of the Meeting Giovanni Capasso (Napoli, Italy) Pierre Cochat, Lyon (France) Rosanna Coppo (Torino, Italy) Olivier Devuyst (Zurich, Switzerland) Gianmarco Ghiggeri (Genova, Italy) Kitty Jager (Amsterdam, The Netherlands) Roberto Ravazzolo (Genova, Italy) Franz Schaefer (Heidelberg, Germany) Enrico Eugenio Verrina (Genova, Italy) The fee of euros 100,00 (50,00 for PhD students and post-docs and for IGG personnel) covers: access to scientific sessions, the welcome cocktail of March 22, 2 coffee breaks and attendance certificate. The fee can be paid after receiving confirmation from the organizing secretariat. Italian CME credits WORKSHOP ON NEPHROLOGY REGISTRIES Including the CME COURSE: “NEPHROLOGY REGISTRIES AND GENETIC RENAL DISEASES” dedicated to Rosanna Gusmano The course “Nephrology registries and genetic renal diseases” has been accredited for Medical Doctors and Biologists (8 credits). Discipline: Paediatrics, Nephrology, Medical Genetics. Official language English Venue Villa Quartara, Badia Benedettina della Castagna Via Romana della Castagna 11 A, 16148 Genoa, Italy. How to reach the venue Plane: from the International Airport Cristoforo Colombo, shuttle bus n. 100 (runs every hour) takes you to Genova Brignole railway station, where you can take bus n. 17 to Via Romana della Castagna. Train: get off at Genova Brignole railway station, take bus n. 17 and get off in Corso Europa, in front of Via Romana della Castagna. Car: motorway exit Genova-Nervi, take Corso Europa westwards, take the overpass to change direction and drive eastwards, pass the Hotel AC and ESSO gas station on the right, after 50 mts. turn right into Via Romana della Castagna, go straight 80 mts., enter the gate and follow the dust lane up to the parking lot. Accommodation Please make your arrangement well in advance. Special rates at the AC Marriot Hotel**** - Genova-Quarto +39-010-3071180 located at walking distance from the Badia as well as at the Hotel Iris *** - Genova-Quarto +39-0103773914. Always mention the CISEF course. Course Directors G.M. Ghiggeri, E. Verrina March 22-23, 2013 Villa Quartara, Badia della Castagna Genoa, Italy Organizing Secretariat Manuela Aloe C.I.S.E.F. International Center for Studies and Training "Germana Gaslini", Genoa tel.: 010 5636.864; fax: 010 5636855 e-mail: [email protected] - www.cisef.org G. Gaslini Children's Hospital Genoa Faculty Antonio Amoroso Transplantation Regional Centre, Piemonte Region “Città della Salute e della Scienza” Hospital, Torino, Italy Corinne Antignac Service de Génétique, Hopital Necker–Enfants Malades, Paris, France Giovanni Capasso Chair of Nephrology, Department of Internal Medicine II University of Naples, Naples, Italy Pierre Cochat Centre de référence des maladies rénales rares, Hospices Civils de Lyon and Université Claude-Bernard Lyon 1, Lyon, France Rosanna Coppo Nephrology Dialysis and Transplantation Regina Margherita Children’s Hospital, Torino, Itlay Olivier Devuyst University of Zurich, Institute of Physiology Zurich Center for Integrative Human Physiology Zurich, Switzerland Francesco Emma Department of Pediatric Nephrology, Dialysis and Transplantation Bambino Gesù Children’s Hospital, Rome, Italy Giulio Gabbiani Department of Pathology and Immunology University of Geneva, Geneva, Switzerland Ali Gharavi Division of Nephrology, Columbia University, New York, USA Gianmarco Ghiggeri Pediatric Nephrology, Dialysis and Transplantation Department G. Gaslini Children’s Hospital, Genoa, Italy Jaap Groothoff Department of Pediatric Nephrology, Academic Medical Center Amsterdam, The Netherlands Jerome Harambat Department of Pediatrics, University of Bordeaux, Bordeaux, France Kitty Jager ERA-EDTA Registry, Department of Medical Informatics Academic Medical Center, Amsterdam, The Netherlands Martin Konrad Department of General Pediatrics University Hospital Muenster, Munster, Germany Marina Noris Department of Molecular Medicine “Aldo e Cele Dacco” Clinical Research Centre for Rare Diseases Bergamo, Italy Luca Rampoldi Dulbecco Telethon Institute San Raffaele Scientific Institute, Milano, Italy Simone Sanna Cherchi Division of Nephrology, Columbia University, New York, USA Gaia Scavia Istituto Superiore di Sanità, Rome, Italy Franz Schaefer Division of Pediatric Nephrology KfH Kidney Center for Children and Adolescents University of Heidelberg, Heidelberg, Germany Constantinos J. Stefanidis Department of Pediatric Nephrology "A. and P. Kyriakou" Children's Hospital, Athens, Greece Enrico Eugenio Verrina Pediatric Nephrology, Dialysis and Transplantation Department G. Gaslini Children’s Hospital, Genoa, Italy PROGRAMME Friday, March 22, 2013 11. 00 Get-together and briefing 11.30-15.30 - Parallel sessions: Operative Meetings ESPN/ERA-EDTA Registry Committee meeting (Kitty Jager, Franz Schaefer) Italian Registry of Paediatric Dialysis Scientific Board meeting (Enrico Verrina) Italian Registry of Haemolytic Uremic Syndrome Scientific Board meeting (Gaia Scavia) Italian Society for Paediatric Nephrology Council meeting (Tommaso De Palo) CME Course: “Nephrology registries and genetic renal diseases” 11.30-15.30 Registration of participants 15.30-17.30 I Session Organization of renal disease registries and networks Coordinator: E. Verrina Chairman : P. Cochat K. Jager The experience and organization of the ERA-EDTA and ESPN/ERA-EDTA Registry – what to expect and what not to expect from a registry. F. Schaefer The experience and the organization of the International Paediatric Peritoneal Dialysis Network. J. Groothoff The extended registry: flaws and gains, experience from the RICH Q network. G. Scavia The Italian haemolytic uremic syndrome registry. 17.30 Tea/cookies break 17.45-19.15 II Session Renal patient registries and rare diseases Coordinator: Constantino J. Stefanidis Chairman: R. Coppo P. Cochat Survival of children starting renal replacement therapy in the neonatal period. J. Harambat Characteristics and outcomes of children with primary oxalosis requiring renal replacement therapy: an ESPN/ERA-EDTA Registry study. F. Emma Improvement in prognosis of nephropathic cystinosis. 19.30 Welcome party Saturday, March 23, 2013 8.15-10.15 III Session Glomerular diseases Coordinator: G.M. Ghiggeri Chairman : A. Amoroso C. Antignac News on podocyte inherited diseases. M. Noris Cytoskeleton genes for nephrotic syndrome G. Gabbiani Physiology and physiopathology of cytoskeleton. 10.15 Invited lecture A. Gharavi Genetics of IgA nephropathy. 11.00 Coffee break 11.30-13.30 IV Session Renal dysplasia/Inherited tubulo-interstitial fibrosis Coordinator: O. Devuyst Chairman: G. Capasso S. Sanna Cherchi Molecular advances in renal dysplasia L. Rampoldi Mechanisms of uromodulin-associated kidney disorders. O. Devuyst Insights into complex diseases: GWAS and uromodulin. M. Konrad Infantile hypercalcemia and related disorders. 14.00 Closing Remark Evaluation test for CME Italian credits and quality assessment questionnaire Release of certificates of attendance. REGISTRATION FORM Settore AFR-AAF ISTITUTO G.GASLINI Please fill in and return to the Organizing Secretariat by Tel.: 010/5636864, Fax: 010/5636885 e-mail: [email protected] Title of the event: Workshop on Nephrology CME course: “Nephrology registries and genetic renal diseases” ID of the event: 1067 Italian C.M.E. ID n°: 856-52936 Venue: Badia della Castagna, Genova Date: March 23, 24 2013 Personal data: NAME …………………………………....………FAMILY NAME……………..…………………....…………………….. Private address: ………………..…….…………………………………………………...……………… ZIP code………...............Town………………................………Country………………………………………………….... Tel……./……………………………………Mobile……................................Fax….../………………….… e-mail………………………………………………………… Institute………………………………………………………………………………………………… Work address:……………………………………..…….………………………...…………………………. ZIP code……...................Town……………………………….…Country……………………… Tel……./………………………………… Mobile………………...................Fax….../………….. For purposes of Continuing Medical Education accreditation, please provide the following information: Date of birth: Place of birth: Codice Fiscale Profession: Discipline: RECRUITMENT BY SPONSORING COMPANIES I hereby declare that I have been recruited by ___________________________________________ Signature: ___________________________________________ Registration fee For Italian participants: Enti Pubblici esenti IVA come disposto dall’art.14, c.10, l. 537/93): The registration fee of euros 100,00 (euros 50,00 for PhD students and post-docs and for IGG personnel) [*] must be paid within 5 days after the confirmation of acceptance by the Organizing Secretariat Pagina 1 di 2 A0702.06-03 REGISTRATION FORM Settore AFR-AAF ISTITUTO G.GASLINI Payment can be made by: A) Credit card: you can either pay online on the website http://www.cisefweb.org/pagamenti/ or send your data to be used by CISEF to charge your card - Visa - Maestro - Mastercard - American Express Card N°___________________________________CVC ____________expiration date ______/_____ (MM/YY) Card holder _______________________________________________ Amount authorised_____________________Signature___________________________Date_______________ B) Bank transfer to: CISEF “Germana Gaslini” cc 11413/80, IBAN IT23B0617501455000001141380, SWIFT/BIC CODE: CRGEITGG442 Please specify on the transfer “AFR - Registration for (the name of the event)” on behalf of (registrant’s name). Please send (preferably by fax) copy of the transfer once it has been ordered All related banking costs are at the registrant’s expenses C) Check payable to CISEF Germana Gaslini, via Romana della Castagna 11A, 16148 Genova and sent to the Organizing Secretariat of CISEF with this form duly signed * The registration fee can be reimbursed only with a 5 days notice before the beginning of the event. Invoice/Receipt The invoice/receipt of your payment will be made out to the public or private subject who makes the payment. Please indicate the full data for the invoice: The invoice should be made out to …………………………….………….......….………….......….………….......….…………....... address…………………………............N°……...............Zip code.....................Town………………P.IVA/CF………………......... and sent to the attention of ……………………………………………………………………………………… Privacy policy; (Art.13, Italian law 196/2003) Your data will be stored in the optical archive of the Istituto G. Gaslini. CISEF will make use of the data provided exclusively for the purpose of the present event including the Italian Continuing Medical Education programme procedures. They will be forwarded to the Italian CME National Commission, stored in the CISEF database and used to keep you informed on relevant CISEF forthcoming events and in case of your future attendance at CISEF events. Please tick the box if you wish we erase your data from the CISEF database. □ The Centro Internazionale di Studi e Formazione “Germana Gaslini”, via Romana della Castagna, 11A, 16148 Genova is the holder of the data. Date……………….… Signature………………………………………… Pagina 2 di 2 A0702.06-03